Political Rant #71: Nasty NICE Attack Pain Sufferers

Once again we see NICE - the National Institute for Health and Clinical Excellence - turn nasty , basically denying tens of thousands of Rheumatoid Arthritis sufferers the medication needed to slow the progress and pain of the condition. A few months ago it was Alzheimer sufferers at risk. NICE is a Government rationing body who determine who can and who cannot have treatment , with cost the chief determining factor. It is all about the money - not theirs , as they haven't got any - but ours , because we pay for this. Please let our Government know that , as far as our money is concerned , we are happy that they spend it on people who need it and that we don't want to be associated with decisions that deny people suffering with RA a pain free life. ---------------------------------Patients' groups have reacted angrily to new guidelines which will mean 40,000 people with rheumatoid arthritis will have possible treatments withdrawn. Without the drugs the patients will suffer more pain, the possibility of more surgery and long-term disability, it is claimed. The decision amounted to a "prescription for pain", experts warned. The National Institute for Health and Clinical Excellence (Nice), today issues a final appraisal document -- the last draft before definitive guidance is issued -- stating that patients who do not respond to one powerful drug cannot try another of the same type. Currently doctors are able to try patients on three variants of a drug type which work by blocking the action of a chemical. If one does not work or its effectiveness wears out over time, sufferers can switch to another, prolonging the period they can remain fit and active. But the drugs are very expensive, with even the cheapest costing around £100 a week per patient. Many rheumatoid arthritis patients live with the disease for decades. They argue that cutting down the options will leave them needlessly living in agony for years. Cutting access to the drugs will speed their decline, meaning they are less able to work for a living and will have to rely more on benefits and care, campaigners say. Ailsa Bosworth, Chief Executive of the National Rheumatoid Arthritis Society, said: "This decision is another nail in the coffin for the treatment of rheumatoid arthritis in England and Wales. "Nice is re-writing the rules of rheumatoid arthritis treatment in this country ignoring the clinical effectiveness of drugs and ignoring the views of patients and clinicians." Rheumatoid arthritis, which differs from osteoarthritis, is an auto-immune disease in which a person's joints are attacked by their body's own defences. It affects 400,000 people of all ages in the UK. Most suffer with a mild form that can be controlled with ordinary painkillers. However, tens of thousands needed the stronger drugs, called anti-TNFs as they block the action of a chemical called tumour necrosis factor (TNF). Between 20,000 and 40,000 people in England and Wales are taking an anti-TNF at any time, and 50 per cent have needed to switch treatments at least once. The anti-TNF drugs currently available on the NHS are Enbrel (its generic name being etanercept), Humira (adalimumab) and Remicade (infliximab). Scientists are not sure why one anti-TNF drug might stop working over time but doctors and patients agree being able to switch between them can be highly beneficial. Once arthritis patients have exhausted the anti-TNF options, under NHS rules they can move on to another drug called rituximab, a 'biologic' which works by modifying the immune system. Until recently they would have then been able to try a separate drug called abatacept, but in April Nice quashed that option, saying it was not cost effective. Consequently campaigners say Nice has reduced the treatment options for people with the disease from five to two.

YouTube | July 22, 2008

Tags:. .cheapest. .cannot. .ignoring. .angrily. .risk